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Popularizing Dementia

Public Expressions and Representations of Forgetfulness

Cite this publication as

Mark Schweda(Hg.), Aagje Swinnen(Hg.), Popularizing Dementia (2015), transcript Verlag, Bielefeld, ISBN: 9783839427101

Tracked since 05/2018


Descripción / Abstract

How are individual and social ideas of late-onset dementia shaped and negotiated in film, literature, the arts, and the media? And how can the symbolic forms provided by popular culture be adopted and transformed by those affected in order to express their own perspectives? This international and interdisciplinary volume summarizes central current research trends and opens new theoretical and empirical perspectives on dementia in popular culture. It includes contributions by internationally renowned scholars from the humanities, social and cultural gerontology, age(ing) studies, cultural studies, philosophy, and bioethics.
Contributions by Lucy Burke, Marlene Goldman, Annette Leibing and others.


Aagje Swinnen (Dr.) is Assistant Professor at the Department of Literature and Art of Maastricht University, Netherlands.
Mark Schweda (Dr.) is Research Associate at the Department for Medical Ethics and History of Medicine at the University Medical Center Göttingen, Germany.


»Die insgesamt 17 Artikel reflektieren eine beeindruckende Bandbreite von Perspektiven, Praktiken und Methoden, die gängige Narrative von Demenz als tragischem Verlust oder als 'lost self' hinterfragen. Diesen stereotypen Erzählungen stellt der Band vielschichtige und lebensbejahende Alternativen entgegen, die wir dringend brauchen.«
Anita Wohlmann, MEDIENwissenschaft, 2 (2017)

»Dieser reichhaltige Band macht von neuem aufmerksam und gibt sowohl der Forschung als auch politischem Engagement wertvolle Anregungen.«
Susanne K. Christ, KULT_online, 46 (2016)


  • Cover Popularizing Dementia
  • Contents
  • Popularizing dementia. Public expressions and representations of forgetfulness
  • The locus of our dis-ease. Narratives of family life in the age of Alzheimer’s
  • Deconstructing the American family. Figures of parents with dementia in Jonathan Franzen’s The Corrections and A.M. Homes’ May We Be Forgiven
  • Purging the world of the Whore and the horror. Gothic and apocalyptic portrayals of dementia in Canadian fiction
  • Narrating the limits of narration. Alzheimer’s disease in contemporary literary texts
  • The ‘terrifying question mark’. Dementia, fiction, and the possibilities of narrative
  • Dementia on the canvas. Art and the biopolitics of creativity
  • Cultural projection of dementia in the Reminiscence Museum. Dynamics of extrapolation
  • Opening Minds through Art. Students’ constructions of people with dementia
  • ‘Zip!’ Dementia materialized in clothing design
  • Challenging representations of dementia in contemporary Western fiction film. From epistemic injustice to social participation
  • Intercorporeal relations and ethical perception. Portrayals of Alzheimer’s disease in Away from Her and En sång för Martin
  • Dementia in the making. Early detection and the body/brain in Alzheimer’s disease
  • The meanings of early diagnostics for Alzheimer’s disease in Dutch newspapers. A framing analysis
  • Respect for autonomy? The contribution of popular magazines to the public understanding of dementia care
  • Representations of Alzheimer’s disease among non-specialists. A cross-cultural study between Paris and Boston
  • In the company of robots. Health care and the identity of people with dementia
  • The zero-degree of dementia. Thinking the gap between subject and substance
  • Acknowledgements
  • Authors

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